Another good night for Jenna in the step-down unit. This morning, they took her off oxygen and she is holding her stats well. There was some concern about low sugar levels, so she is now feeding every two hours and it has been increasing since this change. Jenna has a little jaundice, but the feedings and poops have been bringing her levels lower. She also passed her hearing test this morning after "referring" it yesterday. I think that was the nice way of saying she failed and not hurting her self-esteem...man, even in babies we are being politically correct??? She is being grounded anyways!
She will be going for an echo cardiogram and ultrasound this morning to get a better look at the repair and to see how her little heart is doing. She is much more alert and feeding from the bottle well. Janice will try to nurse her when we get home, in an environment much more comfortable for both Jenna and Mom. They want to be sure the baby is getting all the food she needs and it is much easier to monitor this with the bottle.
We are actually beginning to discuss coming home with Jenna with the doctors. Her surgeon informed us today it was his opinion she could have went home yesterday!!! Timing has been so key to her success. Her surgeon explained to us because of the quick actions taken by her doctors at Lake East so soon after birth, they were able to do the surgery quickly without starving her for days and she was not allowed to "get sick" as most babies with her condition do. She was immediately given drugs to keep the arch and its valves open within hours of birth...this was critical to her success. It is scary to think if the doctors didn't catch this, and she wasn't given the drugs needed to keep this arch open, what would have happened.
Janice and I are amazed at how many people are following her progress and cannot thank you all enough for your notes and prayers. It is very therapeutic to read your notes and keep you updated this way. It has really helped us to keep track of her progress and we have even had to check the blog to remember what has been done when!
I want to especially thank Logan and the Jets for what they did for Jenna and my family yesterday...You are an incredible young man Logan. Keep up the great work! Go Jets!
We'll check in tonight with another update...
She will be going for an echo cardiogram and ultrasound this morning to get a better look at the repair and to see how her little heart is doing. She is much more alert and feeding from the bottle well. Janice will try to nurse her when we get home, in an environment much more comfortable for both Jenna and Mom. They want to be sure the baby is getting all the food she needs and it is much easier to monitor this with the bottle.
We are actually beginning to discuss coming home with Jenna with the doctors. Her surgeon informed us today it was his opinion she could have went home yesterday!!! Timing has been so key to her success. Her surgeon explained to us because of the quick actions taken by her doctors at Lake East so soon after birth, they were able to do the surgery quickly without starving her for days and she was not allowed to "get sick" as most babies with her condition do. She was immediately given drugs to keep the arch and its valves open within hours of birth...this was critical to her success. It is scary to think if the doctors didn't catch this, and she wasn't given the drugs needed to keep this arch open, what would have happened.
Janice and I are amazed at how many people are following her progress and cannot thank you all enough for your notes and prayers. It is very therapeutic to read your notes and keep you updated this way. It has really helped us to keep track of her progress and we have even had to check the blog to remember what has been done when!
I want to especially thank Logan and the Jets for what they did for Jenna and my family yesterday...You are an incredible young man Logan. Keep up the great work! Go Jets!
We'll check in tonight with another update...
1 comment:
Jim,
I am happy to hear that Jenna is doing so well. I have been praying for her and your family. It is amazing to think of everything she has been through in her first week of life. She must be a real trooper. Take it easy
Heather (Liuzzo) Halford
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