I stayed with Jenna over the night, and as you can imagine, this new dad heard everything! Every beep, whimper and discussion. She did really well. She hates to be bothered and not a fan of diaper changes! We had been waiting for her to pee for quite some time and she finally did. overnight. This was another concern because there could be kidney issues as well. She has a consistent output so this is good.
Tuesday brought on an onslaught of testing for Jenna. Many of her counts were perfect, calcium was a little low, not uncommon and she has been getting supplements to raise it. It was normal by the end of the day. It's so hard to see such a little baby, not to mention your own, going through all of this, but the staff has been wonderful and taking every step to keep things as pain free as they can be.
One of the tests we are waiting for is the chromosome test. This will determine whether or not Jenna has Turner's Syndrome. It exists in girls when only one "X" chromosome is present. Boys have X, Y and girls are X, X. Jenna could be X,0. The rate of "deletion" of the other X is what they are looking for. Deletion is common, in everyone, but with this syndrome there are other complications such as the heart condition. An ultrasound of her kidneys reviled she has a "horseshoe kidney." This means the kidneys are fused together and shaped like a horseshoe. Again nothing big, something to monitor. So at this point the heart is the big concern. The chromosome test will just confirm or rule out the possibility of Turner's Syndrome. The surgery would be needed regardless.
I was able to get Janice up to the Clinic by 12:00 p.m. to see Jenna. It was hard leaving the hospital without our newborn, but we knew she was in great hands and in the best place possible. Janice stayed with her all afternoon and I headed to Ashtabula to see big brother Jimmy, and check on things. He has been doing well playing with his cousins and being the crazy boy he is.
The nurses really wanted us to get home and get sleep. We were told the surgery would take place on Wednesday September 10th at 8:00 a.m., so they assured us she would be fine and we headed home to sleep in our own bed for a night. It was great to be home and get a few hours of sleep.
We will head back to Cleveland early in the morning to see all the doc's and see her off to surgery. She had another great day and is starting to get used to her surroundings. We'll keep you posted as we hear from the doctors.
Tuesday brought on an onslaught of testing for Jenna. Many of her counts were perfect, calcium was a little low, not uncommon and she has been getting supplements to raise it. It was normal by the end of the day. It's so hard to see such a little baby, not to mention your own, going through all of this, but the staff has been wonderful and taking every step to keep things as pain free as they can be.
One of the tests we are waiting for is the chromosome test. This will determine whether or not Jenna has Turner's Syndrome. It exists in girls when only one "X" chromosome is present. Boys have X, Y and girls are X, X. Jenna could be X,0. The rate of "deletion" of the other X is what they are looking for. Deletion is common, in everyone, but with this syndrome there are other complications such as the heart condition. An ultrasound of her kidneys reviled she has a "horseshoe kidney." This means the kidneys are fused together and shaped like a horseshoe. Again nothing big, something to monitor. So at this point the heart is the big concern. The chromosome test will just confirm or rule out the possibility of Turner's Syndrome. The surgery would be needed regardless.
I was able to get Janice up to the Clinic by 12:00 p.m. to see Jenna. It was hard leaving the hospital without our newborn, but we knew she was in great hands and in the best place possible. Janice stayed with her all afternoon and I headed to Ashtabula to see big brother Jimmy, and check on things. He has been doing well playing with his cousins and being the crazy boy he is.
The nurses really wanted us to get home and get sleep. We were told the surgery would take place on Wednesday September 10th at 8:00 a.m., so they assured us she would be fine and we headed home to sleep in our own bed for a night. It was great to be home and get a few hours of sleep.
We will head back to Cleveland early in the morning to see all the doc's and see her off to surgery. She had another great day and is starting to get used to her surroundings. We'll keep you posted as we hear from the doctors.
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