Hard to believe it was a week ago today Jenna went into surgery to repair the narrow aortic arch. Even more amazing is that she has been home with us for three days!
Jenna continues to amaze us each day, growing stronger and stronger...eating more and more...crying louder and louder! And what a great sound it is.
Life is beginning to get back to normal. I went back to work on Tuesday after an eventful 1st day home. We took Jenna to her pediatrician on Monday for the first evaluation and weight check. As we were leaving, Janice had some unexpected bleeding that required an ambulance ride from Madison back to Lake East where it all began...so much for being home!
It turned out to be nothing serious, and probably a result of all the stress last week brought on. Janice felt fine the entire time, but it was a little scary holding Jenna, fresh off of heart surgery and seeing your wife being loaded into an ambulance. We eventually made it home to Grandma and Jenna (Grandma raced out to get Jenna and bring her home while I flew to Lake East) around 5:00 p.m.
I think we are going to stay put for a while. Friday we return to the Cleveland Clinic to meet with her Cardiac Surgeon, Dr. Mumtaz. I will eventually post names of all the docs involved once we find all the business cards we have been handed over the last week and try and put faces to names.
We will let you know what happens on Friday with the return visit. Genetics doc on Monday and kidney doc on the following Monday... We're going to be on the road for a while!!! We are hoping the visit with Genetics will give us better insight into what level of Turners Syndrome Jenna has. Her complete chromosome tests should be done by then.
Enjoy some of the pics we took today of Jenna. She is such a little peanut! I also posted a pic of big brother Jimmy when he was born... see any resemblance?
Make sure you get my good side Daddy!
How about changing this shirt???
This is a picture of big brother Jimmy before he left the hospital.No doubt we are brother and sister!
5 comments:
Welcome home, Jenna! And good luck, Donuts.
xoxo
Former Cohabitant
Thank God your beautiful family is all back in the neighborhood!
You are all in my prayers :)
Please let me know if there is anything you need... even if you just need someone to run to the store! Please don't hesitate to call me (BirthCare office during the day). I'll even doggie-sit if you need someone to :)
Congrats on such a beautiful daughter!
Love~
Your neighbor Jennifer
Oh my, what a week you have had! I've been thinking of you since I heard that Jenna was having heart surgery last week. I e-mailed Daria to see how she was doing & she sent me this nice blog link. Jim, you are doing a very nice job updating it :) I cannot believe how much Jenna & Jimmy look alike as newborns . . . almost missed that that was Jimmy in the one pic. I'm so sorry for all you guys have been going through. I could imagine it has been very scary & rough with Janice still recovering too. I will continue to keep you all in my thoughts & prayers!
Love,
Julie Thornton
P.S. I just started working back at the Clinic doing all Cardio stats &, yes, that new building (as well as all the changes they've made) is very impressive. I just toured the new facilities & saw the state-of-the-art equipment that I'm sure will help to keep them ranked as #1 for heart.
Jim and Janice,
Your new daughter is absolutely beautiful. My heart goes out to you for such a scary week you've had, but I'm sure it will pass. She is an extraordinary fighter with an extraordinary family. Best of luck and love to you,
Love,
Jill, Jason, and Natalie Prince
We are so happy that you're all getting settled in home. I hope you're getting in lots of cuddle time. Jenna is a doll and we can't wait to see her in person!
Love,
Justin, Meghan, Jack, & Claire
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