Finally! New Pics!!!

Yes, its been a while! We finally were able to get both Jimmy and Jenna out and sitting still long enough to have their pictures taken. Jenna is still gaining weight, although still spitting up. We have several appointments this month at the Cleveland Clinic, so hopefully we will be getting to the bottom of it soon. She has started cereal and seems to be tolerating it well. Keeping our fingers crossed!!!

Enjoy the pics and we will update after her appointments later this month...

Riding The Referral Merry-Go-Round...

One of my smiling moments...

Lucy's exhausted...

Hope everyone had a wonderful Christmas and a happy and safe New Year!

We have been on the Clinic tour since the last post. We are calling it the referral merry-go-round to figure out why Jenna continues to spit up so much after each feeding. Unfortunately, we are no closer to an answer than we were with our first appointment.

We have had an Upper GI, which was normal, seen the ENT specialists, normal except for swollen adenoids, the Gastroenterologist- twice, a neurologist and a nutritionist. She has a hearing test scheduled and they ordered the big chromosome test which will take 6-8 weeks for the results.

The chromosome test we had done to show that she has Turners was the simple test. As it was told to us, they line up the chromosomes like books and there should be 46 "books" on the shelf. This test now looks at the paragraphs of each book to see if there is anything else missing.

We have now added "failure to thrive" to her chart. She lost an ounce in weight over a month's period, which gives her the designation. What's amazing was at her last appointment in Cleveland with the neurologist, I finally had enough and said we know she is not gaining weight because she is spitting up, and asked what in the battery of tests they ordered will tell us why she is doing this. The answer-nothing! They just want to rule out everything else before they tell us it could be she just spits up more than other babies, but nothing physical or metabolic is wrong. The research we have done suggests that most Turners babies spit up and other families have had little success with doctors on the subject. We'll give it a little bit longer...but patience is wearing thin.

Jenna is now on Prevacid and a formula that we have to order. We're going to try this for a month and see if her gut will relax. The formula is very broken down and easily digested. We are hoping this is going to help and she can go back on another formula once this calms down.

Below are some pictures from our Christmas. Jimmy had a blast although he is afraid of Santa in a big way! We are still cleaing up from Christmas aftermath! Enjoy!!!

Merry Christmas!!!

Mommy & Jenna, Christmas Morning

Jimmy with his new tool set...

NO!!! I'm not excited!!!

The Family...Jenna acting like Jenna!